A mother is grappling with a terrifying reality: her son’s delicate skin may be damaged by simple acts of affection. The young boy suffers from Epidermolysis Bullosa (EB), a rare genetic disorder that causes his skin to blister and tear easily even at the slightest touch or friction. This fragile condition makes even a seemingly innocent cuddle a potential source of excruciating pain, highlighting the challenging reality for families affected by EB. The mother’s experience underscores the need for increased awareness of this debilitating condition and the crucial role of medical care in managing its effects. She shares her story to raise public consciousness and advocate for resources that could make a world of difference for other families living with EB.