Megan Dixon’s story is one of extraordinary resilience and determination. At the age of 13, she began experiencing debilitating health problems that ultimately led to a four-day hospital stay in Peterborough. Doctors initially suspected a stroke, but after extensive testing, she was diagnosed with Functional Neurological Disorder (FND) – a condition where the brain has difficulty correctly sending signals to the body, resulting in a wide range of neurological symptoms.
The initial diagnosis was devastating; doctors told Megan she would never walk, talk, or open her eyes again. She spent 27 months at Eagle Wood Neurological Care Centre and was effectively confined to a wheelchair, relying on a feeding tube for sustenance after losing the ability to swallow. At her worst, she endured an alarming 50 seizures per day. The care home environment presented significant challenges, isolating her from her family who lived near Bath, forcing them to grapple with the profound impact of her condition and the uncertain prognosis.
The diagnosis shifted as understanding of FND evolved. Initially viewed solely through a psychological lens – often dismissed or stigmatized – experts now recognize that while psychological trauma can be a contributing factor, it’s not always the root cause. The disorder fundamentally disrupts how the brain functions, creating a disconnect between thought and action. Megan’s journey included intensive physiotherapy aimed at strengthening remaining muscle control and addressing contractions in her knees, ultimately requiring surgery to enable bending. Despite these advancements, she remains unable to walk.
Remarkably, after 18 months of dedicated therapy, Megan’s life has undergone a significant transformation. She can now move various parts of her body, communicate verbally, and see, although mobility is still limited due to the knee contractions. She describes the experience as “unpredictable,” highlighting the ongoing challenges despite the progress made. To cope with isolation and frustration, she actively shares her experiences on TikTok, celebrating small victories – from moving a finger to simply making it through another day.
Megan’s dream is to pursue a career as a nail technician. She’s diligently saving up to complete an online course and eagerly anticipates moving into her own home with her boyfriend. FND Action emphasizes that this condition can manifest in diverse ways, encompassing symptoms like limb weakness, paralysis, seizures, walking difficulties, spasms, twitching, sensory issues, and more, significantly impacting individuals’ lives. While the basic neurological wiring remains intact, the brain’s ability to process and transmit information is disrupted, leading to debilitating symptoms. The story of Megan Dixon underscores the importance of recognizing FND, combating stigma, and providing comprehensive support for those living with this complex condition.
