A heartbroken mother is sharing her harrowing story of how a rare genetic disorder is causing severe skin complications for her son, leaving him in constant pain and vulnerable to potential injury. The condition, known as Epidermolysis Bullosa (EB), causes the skin to blister and tear easily, even from gentle touch or everyday activities. While medical advancements offer hope, the mother emphasizes the ongoing need for greater public awareness of this debilitating disorder and continued research to find a cure.